Review of the literature to inform the development of strategies to reduce or remove risk factors as
This Report was commissioned by the NSW Ombudsman to inform its work in connection with its reviewable disability deaths functions. Specifically, the report will inform the project that is examining dementia and people with Down syndrome.
The increase in the life expectancy of the general population has seen a parallel increase of acquired disabilities, one of which is the onset of dementia. Similarly, over the past several decades, life expectancy of people with Down syndrome has increased dramatically. At the same time, research has shown that people with Down syndrome are more likely to be affected by dementia earlier than in the general population. Strategies to reduce risk factors associated with the onset of dementia are particularly important in the context of an ageing population. Exploring contemporary literature both in the areas of dementia in the general population and in the intellectual disability population is an essential process in developing policy and strategies to address these disabilities.
This report investigates these situations by conducting a review of the contemporary literature concerning Down syndrome and dementia. The review will inform the development of strategies to reduce or remove risk factors associated with the onset of dementia.
Why is preventative women’s health care important for women with disabilities?
Having a disability does not stop you from getting breast or cervical cancer, or becoming pregnant, or having sexually transmissable diseases or going through menopause. In fact, women with disabilities can have the same risks of developing health problems as other women in the community but in general they don’t receive the same level of preventative health care.
“Even though we have disabilities, we’re no different from any other patient who comes through the door”
These guidelines are designed to assist general practitioners to provide preventative women's
One of the NSW Cervical Screening Program aims is to improve the quality of, and access to, cervical screening services provided by general practitioners to women with disabilities in NSW. Through an assessment of the literature and widespread consumer consultation, the NSW Cervical Screening Program identified that clinical guidelines for service providers who were caring for women with disabilities were not readily available. The NSW Cervical Screening Program formed a partnership with the Centre for Developmental Disability Studies, University of Sydney, to develop the guidelines and to design a small group learning activity for general practitioners to promote them.
These Guidelines are designed to assist general practitioners to provide comprehensive health care to people with intellectual disability. The Guidelines are based on the best evidence available at the time of development. They provide information about commonly occurring health conditions that need to be screened for in people with intellectual disability. The Guidelines do not focus on the management of these health conditions, as the principles of management are similar to those in the general population. Where these differ, due to the different circumstances of people with intellectual disability, this is highlighted. Associated with these Guidelines is a Health Assessment Tool, a checklist to ensure that the major health issues are identified.
While the Guidelines refer to people with intellectual disability, many of the principles of diagnosis and management are equally applicable to people with other developmental disabilities, such as cerebral palsy.